
Endometriosis is known for causing debilitating pelvic pain. But there's a side to the condition that rarely gets discussed. Medical experts and advocates are now highlighting a symptom that has been overlooked for years.
That symptom is severe period pain. Many women have been told it is normal. But doctors say it should never be normalised.
Endometriosis occurs when tissue similar to the uterine lining grows outside the uterus. This leads to inflammation, scarring, and intense pain. Yet, many patients report being dismissed by healthcare providers.
“Women are often told to just deal with it,” said a gynaecologist speaking on condition of anonymity. “This delays diagnosis by years.” The average time to get a correct diagnosis is between seven and ten years.
Despite affecting one in ten women of reproductive age, endometriosis research is severely underfunded. A recent opinion piece in the Deseret News pointed out the disparity. “Millions of women have endometriosis — why is research still so far behind?” the article asked.
Compared to conditions with similar prevalence rates, endometriosis receives a fraction of the research dollars. This has left patients with limited treatment options.
Some patients are turning to cannabis for relief. A piece in High Times Magazine recently explored this trend. “From Pelvic Pain to Pleasure: The Case for Cannabis as Women’s Medicine,” the headline read.
Advocates argue that more studies are needed on how cannabinoids can help manage chronic pelvic pain. But stigma and legal hurdles remain.
Health experts say the first step is education. Both women and doctors need to recognise that severe period pain is not something to be endured in silence.
“If your period pain stops you from going to school or work, that's a red flag,” said a patient advocate. “It's time we stop calling this normal.”
Calls are growing for better diagnostic tools and more research into all aspects of endometriosis. The conversation is finally expanding beyond just pelvic pain.
What to watch: Whether increased public awareness will translate into more funding and faster diagnosis for millions of women living with endometriosis.